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About Spilyay tymoo. (Warm Springs, Or.) 1976-current | View Entire Issue (Aug. 3, 1995)
Spilyay Tymoo Warm Springs, Oregon August 3, 1995 7 Disabled people must be dealt with respectfully by Lucy Linker, executive director of I he Arc of Umatilla County and Norma L. Simpson, OSU Warm Springs Extension Service During the Chatcolab Recreation and Leadership training attended by Tina Aguilar and Valarie Aguilar and Norma Simpson, several presentations were given about work ing with disabled people. Lucy Linker in cluded several pages in the Chatcolab Note book which I think might help us all to interact with people with disabilities. Part 1 has to do with writing about disabilities. And part 2 deals with appropriate terminology for specific disabilities. For many of us it means accepting the right of this group to determine the choices for writing and speaking about them, even if it means that we have to learn new ways of behaving. Perhaps Lucy's opening page will explain why. Lucy started with a question: "What Do You Say? Is language important? Should people with disabilities be concerned about the words used to describe disability and the people who have disabilities? Look at the civil rights efforts in America. One of the most important steps is for any minority group to proudly take control of the language used to define the group. Thus Negroes be came Blacks and now African-Americans and girls became women. "Now it is our turn. We must claim our language. We must use it appropriately so others become familiar with it. We must inform those who write about us what we will accept. How many times have you seen a child with Muscular Dystrophy portrayed as 'suffering?' How many times have you seen stories with people portrayed as 'special?' How about stories about people who are doing important things in the communities, who are describes as 'confined to a wheelchair?' The media will never change the way they talk about us until we first set a good ex ample, then tell them what we expect. PORTRAYAL ISSUES Please consider the following when writ ing about people with disabilities. 1. Do not focus on a disability unless it is crucial to a story. 2. Do not portray people with disabilities who succeed as superhuman. Even though the public tends to admire superachievers, portraying people with disabilities as super stars raises false expectations that all people with disabilities should achieve at this level. 3. Do not sensationalize a disability by saying affected with, crippled with, suffers from, victim of, and so on. Instead, say person who has multiple sclerosis, man who had (or contracted) polio. 4. Do not label people as part of a disabil ity group, such as the retarded. Instead, say people with mental retardation. 5. Put people first, not their disability. Say woman with arthritis, children who are deaf, people with disabilities. This puts the focus on the individual, not on a particular functional limitation. Because of editorial pressures to be succinct, we know it is not always possible to use preferred style (e.g. to put people first). Consider the following al ternatives. These suggestions are not neces sarily sanctioned by the disability groups who have endorse the Guidelines. However, if the portrayal is positive and accurate, the following variations may be used: disabled citizens, nondisablcd people, wheelchair user, deaf girl, brain-damaged woman, paralyzed child, and so on. Crippled, deformed, suffers from, victim of, the retarded, etc. arc never acceptable under any circumstances. 6. Emphasize abilities not limitations. Consider: uses a wheelchairbraces, walks with crutches rather than confined to a wheel chair, wheelchair-bound, or is crippled. Simi larly, do not use descriptors such as unfortu nate, pitiful and so forth. Disability groups also strongly object to using euphemisms to describe disabilities. Blind advocates dislike "partially sighted," because it implies avoiding acceptance of blindness. Terms such as "handicapable, mentally different," and "physically chal lenged" are considered to be condescending and reinforce the idea that disabilities cannot be dealt with upfront. 7. Do not imply disease when discussing disabilities that result from a prior disease episode. People who have had polio and experience after-effects years later have a postpolio disability. They do not currently expcrienc(e) the disease. Do not imply dis ease with people whose disability has re sulted from anatomical or physiological dam age (e.g., person with spina bifida or cerebral palsy). Reference to disease associated with a disability is acceptable only with chronic diseases, such as arthritis, Parkinson's dis ease or multiple sclerosis. People with dis abilities should not be referred to as patients or cases unless their relationship with their doctor is under discussion. 8. Show persons with disabilities as active members of society. Portraying persons with disabilities interacting with nondisabled people in social and work environments, i.e. putting them "in the landscape," helps to break down barriers and open lines of com munications. 9. People is preferred over persons when referring to a large segment of a population, i.e., people with mental retardation. Persons is appropriate for a specific number under 25, i.e., 12 persons with disabilities hold management positions in the company." (em phasis added) As I typed each of these considerations, I could sec changes that I need to make, or steps that I have already made. Several years ago I remember the first time I saw the television ads about a vivacious smiling young girl, who later was shown in her job in a supermarket performed in her wheelchair. Great! I mentally said to myself. The Ameri can media is making progress. And since that time many more disabled people are in TV sitcoms and TV, newspaper and magazine ads and in professional journalism roles. In Part 2 of this series in the next Spilyay. we will include the section about "Appropri ate Terminology for Specific Disabilities. " The movement by the disabled to decide what they wanted to be called and how their disabilities should be understood by others began in 1987. The Chatcolab Notebook contains a bro chure "Beyond the (Associated Press) AP Stylebook" and another brochure "A Guide for Restaurants-People with Developmental Disabilities as Part of the Community" and another publication also by ARC of Oregon called "10 Steps lo Independence: Promot ing Sclf-Dctcrmination in the Home" in En glish and Spanish. And two other single paged handouts "Self-Determination: A Means to an End" and "Supporting Sell Determination for Young Children, Ado lescents and Teens, and Adults." If you would like copies of these two publications, call the OSUWarm Springs Extension Service at 553-3238 and we'll make copies for you. CHVIN,"TATf UNtVIKSfTV K EXTENSION (y SERVICE MoiDia OSU Extension at Warm Springs 1110 Wasco Street 553-3238. OSU Extension Staff; Arleno Doileau 4-H & Youth Bob Pawclek Livestock Norma Simpson Home Economics C.R. Begay (temp.) 4-H Assistant Agriculture Clint Jacks Staff Chair, Madras The above individuals are dovoled to extending research-based information from Oregon State University to the people of Warm Springs in Agriculture, Home Economics, 4-H Youth, Forestry, Community Development, Energy and Extension Sea Grant programs. Oregon State University, United States Department of Agriculturo, Jeflorson County and the Confederated Tribes of Warm Springs cooperating. The Extension Service offers its programs and materials equally to all pooplo. EDUCATION THAT WORKS FOR YOU Wilderness Enrichment Camp work rolling along Hey, hello again! I guess I told an untruth when I said the last article would be my last as the program aide. Oh well! Anyway, here I am once again. Although it seems like we just did the other article, here we are again! I have had no news on the clubs since I last commented on them. I know that really dis tresses the people who read the Extension Corner faithfully. Things are really beginning to get rolling for 4-H Wilderness Enrichment Camp at Trout Lake. It's only two short weeks away. (I could tell you the exact amount of days, hours, minutes and seconds if you like, be cause Arlcne knows this familiar countdown as from years past. Right Arlenc?) Have you signed your kids up yet? The deadline to sign up and pay is the end of July. Remember, we'll be taking the first 40 kids to sign up, who have completed the second grade on up to the eighth grade. It's gonna be a good time for all lillle campers! Parents of campers! Please don't miss the traditional meal on the last day of camp. Make time in your busy schedule to come join your children and fellowship with other folks! It's good to spend lime away from life's trials and tribulations and enjoy nature, some good food and your children. Is this a profound statement or what? Thank You! Thank You! But it is genuine, and it came from my own reflective thinking! After all, you have to come pick them up anyway, I SAID, "HAVE TO". 4-H is about kids and their families, vol unteers who give the best of themselves to the programs. It's getting together, learning new things, and having fun while doing it. Why don't you all think about becoming involved with 4-H somehow. Whether it be because of your kids, grandkids, nieces, neph ews, or whatever! If you have something, anything to offer to this community that could benefit our children, by all means, get busy and just do it! Won't hurt to try! I just remembered, I do have one bit of information on clubs, that is on the Rainbow Camp covers many subjects- Use fresh or canned fruit in recipe by Norma L, Simpson The month of July the emphasis was on frozen desserts. Here is one recipe that can either be frozen and warmed for later or eaten while it is cool from thawing. It can be made from home canned apples or fresh apples. The other emphasis was on canning fruits without sugar, so that you could adapt the fruit for pies or jams later as you prefer. Cherries and apricots were water bathed for 30 minutes, while Marion berries, raspber ries and blueberries were removed from the water bath at 20 minutes. If you remove jars, be sure to replace them with boiling water, so the temperatures and quantity of the water is not lower, nor that the other jars do not break in colder water. Aunt Norma's Favorite Apple-Cheese Dessert 5 cups apple pared and sliced 1 tablespoon bottled lemon juice 34 cup sugar 14 teaspoon cinnamon 14 teaspoon nutmeg 12 cup sifted flour 14 teaspoon salt 14 cup butter or margarine 23 cup grated cheese (cheddar or low fat cheese) If you are slow or interrupted with the preparation process, cut slices into cold wa ter or fruit freeze mixture to keep apples from turning dark. Drain well before putting into the baking dish. Fill pie pan or shallow baking dish with apples; sprinkle it with lemon juice and 14 cup of the sugar. Mix cinnamon, flour, salt and the other 1 2 cup sugar. Cut in butter or margarine until mixture is granular. Stir in cheese. Spread over the apples. Bake at 350 F (moderate oven) until apples are tender or about 40 minutes. Cool slightly and mark for serving sizes. Freeze in air tight package until ready to serve. Thaw about 30 minutes to serve (or thaw and warm in microwave by the piece as you want to eat it). Serve with plain cream or ice cream if desired. Makes six servings. Warm Springs children will be chattering this week about the upcoming 4-H Wilder ness Camp, August 9-13 at Trout Lake. Let this be a reminder that parents of the children will make their own arrangements to get the children and their gear to camp. In fact this is can also be a reminder to the parents to attend the Sunday Traditional Din ner at noon and to pick up the children and their suitcases and sleeping bags. The bags will be in the on the flat bed truck at the entrance to the campground by Trout Lake. Once you have reloaded the children's be longings to your vehicle, you can park your in that camp ground by the lake while at the dinner. At Wilderness camp, the children learn about using a compass from National Guard volunteers. This experience prepares the chil dren for a more challenging survival experi ences next year. Two hikes are held Friday August 1 1 . One hike is for more experienced hikers to the top of Ollalie Butte and the other to Ollalie Lake, gathering huckleberries as they go. The campers learn about the woods and its animals from Ken and Heidi Smith; and draw and identify animal tracks. They make tradi tional baskets with Rosemary Charlie; learn ways to make new friends and develop better relationships with other children and adults. They learn about maps with counties, rivers, volcanoes, and reservations in the Northwest with Norma Simpson. The children and advisors will enjoy the benefits of the sweat lodge; learn about the (lag ceremonies; swim in the lake; serve on KP; and paint clown faces with Carol Allison. In the next Spilyay we'll report more about the camp activities complete with pic tures. We will also have more information about the Day Camps on Monday and Tuesday for the Latch Key children. Tongue-twister challenges the most articulate- by Norma L. Simpson While attending the Orff Music class at Chatcolab, I had an unusual experience with a 32-year-old man with mental retardation. He, too, liked the music we learned on the xylophone and percussion instruments. He especially wanted to join the session when our group learned to exchange the words in a tongue-twister for musical instruments. Knowing that I have trouble with tongue- twisters, I presumed that he would as well. It was a mistake. He did better with the twister than most of us. The tongue-twister goes like this: Betty Botter bought some butter. But she said "This butter's bitter. If I put it in my batter, It will make my batter bitter. But a bit of better butter Will make my batter better. So she bought some better butter And it made her batter better. So 'twas better Betty Botter Bought a bit of better butter. In the next Spilyay, I will share more of the information from the Chatcolab Note book Part 1 about how they want people to write about people with disabilities. In the following issue well have Part 2 about appro priate terminology for specific disabilities. Stockman's Roundup: Agent has much to learn about local culture ly1 by Bob Pawelek OSU Livestock Agent Back in December, I got a call from Bobby Brunoe who asked me to attend a meeting in his stead at the Soil Conservation Service office at The Dalles. The weather was cool yet cooperative, and I enjoyed the drive up to the river, al though I had no hint as to what the meeting was about. When I arrived, I was greeted by my friend. Dusty Eddy, who is a range con servation for what was the SCS. Now they're called the NRCS, for "Natural Resources" instead of just "Soil." "AH that talk about USDA reorganization and all they did was change the name," I asked. Dusty replied that no, the NRCS has been redistricted, and now the agency is responsible for watershed basins instead of just counties. It seems to be working out pretty well. I That bit of information made the trip worthwhile already, and that wasn't even why I was called to attend. Dusty handed me a cup of coffee and introduced me to some very interesting folks. Louie Dick, of the Umatilla Tribe's Natural Resources Department was on hand, as was a very tall and intimidating white man by the name of Alan Epps. "As you've heard, Bob, the NRCS has been implementing training for USDA per sonnel to work more effectively in Indian Country," Mr. Epps remarked. I was particu larly careful in emphasizing the "Mr." part in addressing this man. "We would like your help in developing a workshop for these folks here in Oregon." There is no doubt these people need a cultural exchange. Very few agency people understand how tribal government works, and even fewer know how to work with tribes and tribal members. There had been nine previous workshops of this sort across the American West and now it was our turn. The biggest problem, it seemed, was where to have it. Louie sug gested that Warm Springs serve as the host, as our reservation is more centrally located. "Well there's Kah-Nee-Ta," I proposed. "We have many workshops there." "Kah-Nee-Ta is fine, Bob, but what we're looking for is a rustic setting, someplace these technical people can develop a rela tionship with the tribal members and get in touch with the land," Mr. Epps said. "Rustic," I thought to myself. "Well, there's Bear Springs Ranger Station. It's sort of on the reservation and it is clearly not a resort." It was agreed that we meet there the next day and visit with the rangers about the possibility of 75 people camping there for a week in July. Fire crews. No room. Well I had a couple other places for them to visit. Trout Lake was my next suggestive choice. "This is a beautiful place, Bob, but it's quite rustic." I took my dilemma to Range & Ag, and immediately Dave Smith suggested the Eyerly property. Perfect. Now all we needed was permission. And a cook. And showers and speakers and tables and firewood.... Bernice Mitchell was gracious in agree ing to speak the first day about Warm Springs, its people and traditions. Jerry Lunak, a Blackfeet Indian spoke of his personal tribu lations in working in the white man's world. Louie Dick compared Indian values vs. non Indian views. An OSU professor spoke of history and the subjugation that American Indians have faced since the 19lh Century. Jody Calica offered his own sense of history, pointing out the fact that this land has been inhabited for at least 12,000 years (many hundreds of generations) and that the native peoples of this land agreed to a treaty with an entity called the United States of American less than four genera tions ago. Halfway through the workshop, it oc curred to me that even I still have much to learn about Indian ways. Bobby Brunoe and Dave Smith gave talks on IRMP, Range & Ag projects, and the role of the Bureau of Indian Affairs. They offered advice on how USDA personnel can help tribes work to achieve common goals. Alan Epps extended his own experience when asked how to behave in front of ciders. By the time the workshop was nearing an end, the participants were absorbed with an aware ness that they had not brought with them. We got rained on once or tw ice. And I will concede that Bobby Brunoe outfished me. And yes. I forgot to request a fire permit for Irene Towe's salmon bake. We accomplished our objectives. The agency people now have a working knowl edge of tribal government and Indian values. And I have a newfound respect for Warm Springs and the people I work w ith. Dancers Club. The club has picked itself up off the dance floor and decided to give it another try. Talk about some leadership! These people rallied together and took the bull by the horns, or was it roped the bull by the horns? (oh no, that's team roping) I really must admire this club, they do have staying power. So let it be known: The Rainbow Dancers arc back once again, they are strong, and ready to exhibit their dances to the full est. They will be attending the State Fair in Salem, Oregon again this year. ANOTHER NOTE TO ALL YOU 4-H LEADERS REGARDING 4-H HEALTH REGISTRATION FORMS get them in for 1995. 1 believe I spoke to some of you about these, even gave you the forms to fill out and bring back. I won't use any names but here are some leaders that need to get the 4-H health forms into the OSU Extension Office for 1995: Raneva Dowty - Search and Res cue Cadets, Foster Kalama - CRB Girls Bas ketball Team, Violctta Vacth - Cultural Club, ALL RAINBOW DANCER CLUB MEM BERS AND LEADERS, Keith Baker - 4-H Search and Rescue, Laura Fuentcs - WS Livestock Club, Andy Leonard - Club Run ning Eagles. I hope I've covered everything I need to, probably not, but hey, at least I gave it a shot. See you down the 4-H Trail. ..later, C.R. What's in the ground beef? by Norma L. Simpson What's the difference between Regular, Lean and Extra Lean Beef? That's a question often asked at the meat counter. Well the answer is the amount of FAT in the package. Standards have been set for various cat egories of ground beef. Regular ground beef has a maximum fat content of 30. Lean Ground Bee has a maximum of 22 fat. Extra Lean Ground Beef has a maximum of 1 6 fat. Any thing exceeding those specific levels is a violation of the standard. Oregonians are much more sure that the amount of fat in ground beef is within the limits of the standard for the label on the package. Recently the Oregon Department of Agriculture Food Safety Division (ODAFSD) reported that the meat products industry is paying much more attention to the fat levels in ground beef. The Department tested nearly 200 packages of ground beef purchased at random from retailers around the state. Only about 9 of the (18 samples of the 195 tested) violated the labeling. Retailers are required to be sure that the meat matches the label on the package. When the ODAFSD takes a sample to test, the lab notifies the retailer of the results. If a mislabeling occurs, the Food Safety special ists will meet directly with the store man ager. Then several weeks later, another pack age will be tested. If a second violation is found, the ODA can turn the matter over to the local district attorney for consumer fraud. Thankfully, that step has not been necessary. It's an indication that the industry takes the matter seriously. Setting up housekeeping can be costly by Norma L. Simpson During the Career Day held June 22, 1 995, I prepared some guidelines for young people who are getting ready for living in a Dormi tory or in a new apartment when they go away to college. These two sheets are good guides to the things that you need to have in cither setting. In addition, the lists will give you the cost and serve as a reference for an insurance policy. To set up a "Cozy Dorm Pad" with new purchases including a word processor w ould cost about S850 in contrast to a $400 a month unfurnished apartment which would cost about $4,000. The Happy Cozy Apartment list would also be helpful for a new couple. Items could also be purchased at garage sales or be "An cient Attic" furniture from Grandma's house. If you would like copies of the list, call OSU Extension 553-3238 or pick up the list outside my office on the Main Floor of the Education Center. i I