Spilyay Tymoo
Warm Springs, Oregon
August 3, 1995 7
Disabled people must be dealt with respectfully
by Lucy Linker, executive director of
I he Arc of Umatilla County and
Norma L. Simpson, OSU
Warm Springs Extension Service
During the Chatcolab Recreation and
Leadership training attended by Tina Aguilar
and Valarie Aguilar and Norma Simpson,
several presentations were given about work
ing with disabled people. Lucy Linker in
cluded several pages in the Chatcolab Note
book which I think might help us all to
interact with people with disabilities. Part 1
has to do with writing about disabilities. And
part 2 deals with appropriate terminology for
specific disabilities.
For many of us it means accepting the
right of this group to determine the choices
for writing and speaking about them, even if
it means that we have to learn new ways of
behaving. Perhaps Lucy's opening page will
explain why.
Lucy started with a question: "What Do
You Say? Is language important? Should
people with disabilities be concerned about
the words used to describe disability and the
people who have disabilities? Look at the
civil rights efforts in America. One of the
most important steps is for any minority
group to proudly take control of the language
used to define the group. Thus Negroes be
came Blacks and now African-Americans
and girls became women.
"Now it is our turn. We must claim our
language. We must use it appropriately so
others become familiar with it. We must
inform those who write about us what we
will accept. How many times have you seen
a child with Muscular Dystrophy portrayed
as 'suffering?'
How many times have you seen stories
with people portrayed as 'special?' How
about stories about people who are doing
important things in the communities, who
are describes as 'confined to a wheelchair?'
The media will never change the way they
talk about us until we first set a good ex
ample, then tell them what we expect.
PORTRAYAL ISSUES
Please consider the following when writ
ing about people with disabilities.
1. Do not focus on a disability unless it is
crucial to a story.
2. Do not portray people with disabilities
who succeed as superhuman. Even though
the public tends to admire superachievers,
portraying people with disabilities as super
stars raises false expectations that all people
with disabilities should achieve at this level.
3. Do not sensationalize a disability by
saying affected with, crippled with, suffers
from, victim of, and so on. Instead, say
person who has multiple sclerosis, man who
had (or contracted) polio.
4. Do not label people as part of a disabil
ity group, such as the retarded. Instead, say
people with mental retardation.
5. Put people first, not their disability.
Say woman with arthritis, children who are
deaf, people with disabilities. This puts the
focus on the individual, not on a particular
functional limitation. Because of editorial
pressures to be succinct, we know it is not
always possible to use preferred style (e.g. to
put people first). Consider the following al
ternatives. These suggestions are not neces
sarily sanctioned by the disability groups
who have endorse the Guidelines. However,
if the portrayal is positive and accurate, the
following variations may be used: disabled
citizens, nondisablcd people, wheelchair user,
deaf girl, brain-damaged woman, paralyzed
child, and so on. Crippled, deformed, suffers
from, victim of, the retarded, etc. arc never
acceptable under any circumstances.
6. Emphasize abilities not limitations.
Consider: uses a wheelchairbraces, walks
with crutches rather than confined to a wheel
chair, wheelchair-bound, or is crippled. Simi
larly, do not use descriptors such as unfortu
nate, pitiful and so forth.
Disability groups also strongly object to
using euphemisms to describe disabilities.
Blind advocates dislike "partially sighted,"
because it implies avoiding acceptance of
blindness. Terms such as "handicapable,
mentally different," and "physically chal
lenged" are considered to be condescending
and reinforce the idea that disabilities cannot
be dealt with upfront.
7. Do not imply disease when discussing
disabilities that result from a prior disease
episode. People who have had polio and
experience after-effects years later have a
postpolio disability. They do not currently
expcrienc(e) the disease. Do not imply dis
ease with people whose disability has re
sulted from anatomical or physiological dam
age (e.g., person with spina bifida or cerebral
palsy).
Reference to disease associated with a
disability is acceptable only with chronic
diseases, such as arthritis, Parkinson's dis
ease or multiple sclerosis. People with dis
abilities should not be referred to as patients
or cases unless their relationship with their
doctor is under discussion.
8. Show persons with disabilities as active
members of society. Portraying persons with
disabilities interacting with nondisabled
people in social and work environments, i.e.
putting them "in the landscape," helps to
break down barriers and open lines of com
munications. 9. People is preferred over persons when
referring to a large segment of a population,
i.e., people with mental retardation. Persons
is appropriate for a specific number under
25, i.e., 12 persons with disabilities hold
management positions in the company." (em
phasis added)
As I typed each of these considerations, I
could sec changes that I need to make, or
steps that I have already made. Several years
ago I remember the first time I saw the
television ads about a vivacious smiling
young girl, who later was shown in her job in
a supermarket performed in her wheelchair.
Great! I mentally said to myself. The Ameri
can media is making progress. And since that
time many more disabled people are in TV
sitcoms and TV, newspaper and magazine
ads and in professional journalism roles.
In Part 2 of this series in the next Spilyay.
we will include the section about "Appropri
ate Terminology for Specific Disabilities. "
The movement by the disabled to decide
what they wanted to be called and how their
disabilities should be understood by others
began in 1987.
The Chatcolab Notebook contains a bro
chure "Beyond the (Associated Press) AP
Stylebook" and another brochure "A Guide
for Restaurants-People with Developmental
Disabilities as Part of the Community" and
another publication also by ARC of Oregon
called "10 Steps lo Independence: Promot
ing Sclf-Dctcrmination in the Home" in En
glish and Spanish. And two other single
paged handouts "Self-Determination: A
Means to an End" and "Supporting Sell
Determination for Young Children, Ado
lescents and Teens, and Adults." If you would
like copies of these two publications, call the
OSUWarm Springs Extension Service at
553-3238 and we'll make copies for you.
CHVIN,"TATf UNtVIKSfTV
K EXTENSION
(y SERVICE
MoiDia
OSU Extension
at Warm Springs
1110 Wasco Street
553-3238.
OSU Extension Staff;
Arleno Doileau 4-H & Youth
Bob Pawclek Livestock
Norma Simpson Home Economics
C.R. Begay (temp.) 4-H Assistant
Agriculture
Clint Jacks Staff Chair, Madras
The above individuals are dovoled to extending research-based information from
Oregon State University to the people of Warm Springs in Agriculture, Home
Economics, 4-H Youth, Forestry, Community Development, Energy and Extension
Sea Grant programs. Oregon State University, United States Department of
Agriculturo, Jeflorson County and the Confederated Tribes of Warm Springs
cooperating. The Extension Service offers its programs and materials equally to all
pooplo.
EDUCATION THAT WORKS FOR YOU
Wilderness Enrichment Camp work rolling along
Hey, hello again! I guess I told an untruth
when I said the last article would be my last
as the program aide. Oh well! Anyway, here
I am once again. Although it seems like we
just did the other article, here we are again!
I have had no news on the clubs since I last
commented on them. I know that really dis
tresses the people who read the Extension
Corner faithfully.
Things are really beginning to get rolling
for 4-H Wilderness Enrichment Camp at
Trout Lake. It's only two short weeks away.
(I could tell you the exact amount of days,
hours, minutes and seconds if you like, be
cause Arlcne knows this familiar countdown
as from years past. Right Arlenc?) Have you
signed your kids up yet? The deadline to sign
up and pay is the end of July. Remember,
we'll be taking the first 40 kids to sign up,
who have completed the second grade on up
to the eighth grade. It's gonna be a good time
for all lillle campers!
Parents of campers! Please don't miss the
traditional meal on the last day of camp.
Make time in your busy schedule to come
join your children and fellowship with other
folks! It's good to spend lime away from
life's trials and tribulations and enjoy nature,
some good food and your children.
Is this a profound statement or what?
Thank You! Thank You! But it is genuine,
and it came from my own reflective thinking!
After all, you have to come pick them up
anyway, I SAID, "HAVE TO".
4-H is about kids and their families, vol
unteers who give the best of themselves to
the programs. It's getting together, learning
new things, and having fun while doing it.
Why don't you all think about becoming
involved with 4-H somehow. Whether it be
because of your kids, grandkids, nieces, neph
ews, or whatever! If you have something,
anything to offer to this community that
could benefit our children, by all means, get
busy and just do it! Won't hurt to try!
I just remembered, I do have one bit of
information on clubs, that is on the Rainbow
Camp covers many subjects-
Use fresh or canned fruit in recipe
by Norma L, Simpson
The month of July the emphasis was on
frozen desserts. Here is one recipe that can
either be frozen and warmed for later or eaten
while it is cool from thawing. It can be made
from home canned apples or fresh apples.
The other emphasis was on canning fruits
without sugar, so that you could adapt the
fruit for pies or jams later as you prefer.
Cherries and apricots were water bathed for
30 minutes, while Marion berries, raspber
ries and blueberries were removed from the
water bath at 20 minutes. If you remove jars,
be sure to replace them with boiling water, so
the temperatures and quantity of the water is
not lower, nor that the other jars do not break
in colder water.
Aunt Norma's Favorite
Apple-Cheese Dessert
5 cups apple pared and sliced
1 tablespoon bottled lemon juice
34 cup sugar
14 teaspoon cinnamon
14 teaspoon nutmeg
12 cup sifted flour
14 teaspoon salt
14 cup butter or margarine
23 cup grated cheese (cheddar or low fat
cheese)
If you are slow or interrupted with the
preparation process, cut slices into cold wa
ter or fruit freeze mixture to keep apples from
turning dark. Drain well before putting into
the baking dish.
Fill pie pan or shallow baking dish with
apples; sprinkle it with lemon juice and 14
cup of the sugar.
Mix cinnamon, flour, salt and the other 1
2 cup sugar. Cut in butter or margarine until
mixture is granular. Stir in cheese. Spread
over the apples.
Bake at 350 F (moderate oven) until
apples are tender or about 40 minutes. Cool
slightly and mark for serving sizes. Freeze in
air tight package until ready to serve. Thaw
about 30 minutes to serve (or thaw and warm
in microwave by the piece as you want to eat
it). Serve with plain cream or ice cream if
desired.
Makes six servings.
Warm Springs children will be chattering
this week about the upcoming 4-H Wilder
ness Camp, August 9-13 at Trout Lake. Let
this be a reminder that parents of the children
will make their own arrangements to get the
children and their gear to camp.
In fact this is can also be a reminder to the
parents to attend the Sunday Traditional Din
ner at noon and to pick up the children and
their suitcases and sleeping bags. The bags
will be in the on the flat bed truck at the
entrance to the campground by Trout Lake.
Once you have reloaded the children's be
longings to your vehicle, you can park your
in that camp ground by the lake while at the
dinner.
At Wilderness camp, the children learn
about using a compass from National Guard
volunteers. This experience prepares the chil
dren for a more challenging survival experi
ences next year.
Two hikes are held Friday August 1 1 . One
hike is for more experienced hikers to the top
of Ollalie Butte and the other to Ollalie Lake,
gathering huckleberries as they go.
The campers learn about the woods and its
animals from Ken and Heidi Smith; and draw
and identify animal tracks. They make tradi
tional baskets with Rosemary Charlie; learn
ways to make new friends and develop better
relationships with other children and adults.
They learn about maps with counties, rivers,
volcanoes, and reservations in the Northwest
with Norma Simpson.
The children and advisors will enjoy the
benefits of the sweat lodge; learn about the
(lag ceremonies; swim in the lake; serve on
KP; and paint clown faces with Carol Allison.
In the next Spilyay we'll report more
about the camp activities complete with pic
tures. We
will also have more information about the
Day Camps on Monday and Tuesday for the
Latch Key children.
Tongue-twister challenges the most articulate-
by Norma L. Simpson
While attending the Orff Music class at
Chatcolab, I had an unusual experience with
a 32-year-old man with mental retardation.
He, too, liked the music we learned on the
xylophone and percussion instruments. He
especially wanted to join the session when
our group learned to exchange the words in a
tongue-twister for musical instruments.
Knowing that I have trouble with tongue-
twisters, I presumed that he would as well. It
was a mistake. He did better with the twister
than most of us. The tongue-twister goes like
this:
Betty Botter bought some butter.
But she said "This butter's bitter.
If I put it in my batter,
It will make my batter bitter.
But a bit of better butter
Will make my batter better.
So she bought some better butter
And it made her batter better.
So 'twas better Betty Botter
Bought a bit of better butter.
In the next Spilyay, I will share more of
the information from the Chatcolab Note
book Part 1 about how they want people to
write about people with disabilities. In the
following issue well have Part 2 about appro
priate terminology for specific disabilities.
Stockman's Roundup: Agent has much to learn about local culture
ly1
by Bob Pawelek
OSU Livestock Agent
Back in December, I got a call from Bobby
Brunoe who asked me to attend a meeting in
his stead at the Soil Conservation Service
office at The Dalles.
The weather was cool yet cooperative,
and I enjoyed the drive up to the river, al
though I had no hint as to what the meeting
was about. When I arrived, I was greeted by
my friend. Dusty Eddy, who is a range con
servation for what was the SCS. Now they're
called the NRCS, for "Natural Resources"
instead of just "Soil."
"AH that talk about USDA reorganization
and all they did was change the name," I
asked. Dusty replied that no, the NRCS has
been redistricted, and now the agency is
responsible for watershed basins instead of
just counties. It seems to be working out
pretty well. I
That bit of information made the trip
worthwhile already, and that wasn't even
why I was called to attend.
Dusty handed me a cup of coffee and
introduced me to some very interesting folks.
Louie Dick, of the Umatilla Tribe's Natural
Resources Department was on hand, as was
a very tall and intimidating white man by the
name of Alan Epps.
"As you've heard, Bob, the NRCS has
been implementing training for USDA per
sonnel to work more effectively in Indian
Country," Mr. Epps remarked. I was particu
larly careful in emphasizing the "Mr." part in
addressing this man. "We would like your
help in developing a workshop for these
folks here in Oregon."
There is no doubt these people need a
cultural exchange. Very few agency people
understand how tribal government works,
and even fewer know how to work with tribes
and tribal members.
There had been nine previous workshops
of this sort across the American West and
now it was our turn. The biggest problem, it
seemed, was where to have it. Louie sug
gested that Warm Springs serve as the host,
as our reservation is more centrally located.
"Well there's Kah-Nee-Ta," I proposed. "We
have many workshops there."
"Kah-Nee-Ta is fine, Bob, but what we're
looking for is a rustic setting, someplace
these technical people can develop a rela
tionship with the tribal members and get in
touch with the land," Mr. Epps said.
"Rustic," I thought to myself. "Well,
there's Bear Springs Ranger Station. It's
sort of on the reservation and it is clearly not
a resort." It was agreed that we meet there
the next day and visit with the rangers about
the possibility of 75 people camping there
for a week in July.
Fire crews. No room. Well I had a couple
other places for them to visit. Trout Lake
was my next suggestive choice. "This is a
beautiful place, Bob, but it's quite rustic."
I took my dilemma to Range & Ag, and
immediately Dave Smith suggested the
Eyerly property. Perfect. Now all we needed
was permission. And a cook. And showers
and speakers and tables and firewood....
Bernice Mitchell was gracious in agree
ing to speak the first day about Warm Springs,
its people and traditions. Jerry Lunak, a
Blackfeet Indian spoke of his personal tribu
lations in working in the white man's world.
Louie Dick compared Indian values vs. non
Indian views. An OSU professor spoke of
history and the subjugation that American
Indians have faced since the 19lh Century.
Jody Calica offered his own sense of history,
pointing out the fact that this land has been
inhabited for at least 12,000 years (many
hundreds of generations) and that the native
peoples of this land agreed to a treaty with an
entity called the United
States of American less than four genera
tions ago.
Halfway through the workshop, it oc
curred to me that even I still have much to
learn about Indian ways.
Bobby Brunoe and Dave Smith gave talks
on IRMP, Range & Ag projects, and the role
of the Bureau of Indian Affairs. They offered
advice on how USDA personnel can help
tribes work to achieve common goals. Alan
Epps extended his own experience when
asked how to behave in front of ciders. By the
time the workshop was nearing an end, the
participants were absorbed with an aware
ness that they had not brought with them.
We got rained on once or tw ice. And I will
concede that Bobby Brunoe outfished me.
And yes. I forgot to request a fire permit for
Irene Towe's salmon bake.
We accomplished our objectives. The
agency people now have a working knowl
edge of tribal government and Indian values.
And I have a newfound respect for Warm
Springs and the people I work w ith.
Dancers Club. The club has picked itself up
off the dance floor and decided to give it
another try. Talk about some leadership!
These people rallied together and took the
bull by the horns, or was it roped the bull by
the horns? (oh no, that's team roping) I really
must admire this club, they do have staying
power. So let it be known: The Rainbow
Dancers arc back once again, they are strong,
and ready to exhibit their dances to the full
est. They will be attending the State Fair in
Salem, Oregon again this year.
ANOTHER NOTE TO ALL YOU 4-H
LEADERS REGARDING 4-H HEALTH
REGISTRATION FORMS get them in for
1995. 1 believe I spoke to some of you about
these, even gave you the forms to fill out and
bring back. I won't use any names but here
are some leaders that need to get the 4-H
health forms into the OSU Extension Office
for 1995: Raneva Dowty - Search and Res
cue Cadets, Foster Kalama - CRB Girls Bas
ketball Team, Violctta Vacth - Cultural Club,
ALL RAINBOW DANCER CLUB MEM
BERS AND LEADERS, Keith Baker - 4-H
Search and Rescue, Laura Fuentcs - WS
Livestock Club, Andy Leonard - Club Run
ning Eagles.
I hope I've covered everything I need to,
probably not, but hey, at least I gave it a shot.
See you down the 4-H Trail. ..later,
C.R.
What's in the
ground beef?
by Norma L. Simpson
What's the difference between Regular,
Lean and Extra Lean Beef? That's a question
often asked at the meat counter. Well the
answer is the amount of FAT in the package.
Standards have been set for various cat
egories of ground beef. Regular ground beef
has a maximum fat content of 30. Lean
Ground Bee has a maximum of 22 fat.
Extra Lean Ground Beef has a maximum of
1 6 fat. Any thing exceeding those specific
levels is a violation of the standard.
Oregonians are much more sure that the
amount of fat in ground beef is within the
limits of the standard for the label on the
package. Recently the Oregon Department
of Agriculture Food Safety Division
(ODAFSD) reported that the meat products
industry is paying much more attention to the
fat levels in ground beef. The Department
tested nearly 200 packages of ground beef
purchased at random from retailers around
the state.
Only about 9 of the (18 samples of the
195 tested) violated the labeling.
Retailers are required to be sure that the
meat matches the label on the package. When
the ODAFSD takes a sample to test, the lab
notifies the retailer of the results. If a
mislabeling occurs, the Food Safety special
ists will meet directly with the store man
ager. Then several weeks later, another pack
age will be tested. If a second violation is
found, the ODA can turn the matter over to
the local district attorney for consumer fraud.
Thankfully, that step has not been necessary.
It's an indication that the industry takes the
matter seriously.
Setting up
housekeeping
can be costly
by Norma L. Simpson
During the Career Day held June 22, 1 995,
I prepared some guidelines for young people
who are getting ready for living in a Dormi
tory or in a new apartment when they go
away to college. These two sheets are good
guides to the things that you need to have in
cither setting. In addition, the lists will give
you the cost and serve as a reference for an
insurance policy. To set up a "Cozy Dorm
Pad" with new purchases including a word
processor w ould cost about S850 in contrast
to a $400 a month unfurnished apartment
which would cost about $4,000.
The Happy Cozy Apartment list would
also be helpful for a new couple. Items could
also be purchased at garage sales or be "An
cient Attic" furniture from Grandma's house.
If you would like copies of the list, call
OSU Extension 553-3238 or pick up the list
outside my office on the Main Floor of the
Education Center.
i
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