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About Sandy post. (Sandy, Oregon) 1938-current | View Entire Issue (Dec. 21, 1978)
' * • V -j W • » • » rgpXWAinp*IMffP4WP*MRnRPiMR04RRPweR|> f z / < • * * ♦ »» » f « • • * * « • » ' « < « > * . « • • * * « » » ♦ • » ' T t y ÀV , "> V * * • • • e Thur« . Dec 21. 197« (See I) SANDY (Ore.) POST - 7 Christmas reunion made possible for family By JAN LOVELL L ik e so m a n y o th e r fa m ilie s , the Roy B rin k le y s w ant to share the C h ristm as ho lid ays tog ether a t home. B u t u n lik e m any other fa m ilie s , th e B r in k le y s ' s im p le de sire to have th e ir fa m ily tog ether fo r the h o lid a y s m e a n s m a k in g s p e c ia l and c o s tly a r r a n g e m e n ts w ith th e U n iv e rs ity of Oregon H ealth Sciences C enter in P ortla nd . T h e ir 4-year-old son J a m ie has been under intensive care at the h o sp ita l since A u g . 28. He is pa ra lyzed fro m the neck down. J a m ie was born w ith a genetic enzym e de ficiency called “ M o rq u io ’s Disease.” T his e x tre m e ly ra re disease causes d e fo rm a tio n of the bones and a b n o rm a litie s in the body tissues. The con dition ha d not been po sitive ly diagnosed u n til th is sum m er, even though his head began to f a ll back and his feet began to tu rn under. J a m ie w ill e ve n tu a lly die from the disease o r its com p lica tion s. Since J u ly , Ja m ie has had to fig h t even m ore d iffic u ltie s . One day he fe ll o ff his fa v o rite toy m o to r c y c le . That f a ll severely dam aged his spinal colum n , causing pa ra lysis in his le ft side. A n a tte m p t a t co rre c tiv e su rg e ry on Aug. 28 fa ile d and J a m ie B rin k le y has been to ta lly pa ralyzed fro m his neck dow n ever since. A lth o u g h he was taken out of the in te nsive care u n it alm ost tw o weeks ago J a m ie is s t ill under 24-hour care. He m ust use a re s p ira to r and bre a th e throu gh a tube in his throa t. J a m ie ’s fa m ily has been a big p a rt of th a t 24-hour care. H is m o th e r and fa th e r, S he rry and Roy, have spent m any hours co m m u tin g fro m th e ir hom e in Lebanon to the h o sp ita l. S h e rry even stayed in a m o b ile hom e in the h o sp ita l p a rk in g lot the firs t few c r itic a l weeks a fte r the su rg e ry. R oy’ s parents, Duncan and Bea B rin k le y of B o rin g have a lso been a lm o s t d a ily v is ito rs . R oy’s b ro th e rs and sisters, C a rl, Vona and Gwen have been able to v is it Jam ie also. A ll are gra du ates of Sandy H ig h school, and, w ith the exception of Vona, s till liv e in the S andy-B oring area. B u t J a m ie ’s fa m ily has decided th a t i t ’ s tim e fo r h im to com e hom e again. T h e y’ ve been pla n n in g since O ctober to have J a m ie hom e in tim e fo r C h ristm a s day. “ We’ ve ju s t got to have h im home for C h ris tm a s ,” S h e rry said. “ We spent T ha n ksg ivin g here and we don’t w ant to have to do th a t again. We ju st w a nt to be one fa m ily a g a in .” T h a t s im p le w is h o f w a n tin g J a m ie back home again w ill be a co stly p ro je ct fo r the fa m ily . As long as he is in the h o sp ita l, the in surance covers the costs. Once J a m ie goes home, ho w e ver, the B rin k le y s m ust pa y tw e n ty percent of the cost. The B rin k le y s ’ share of the cost w ill include at least $1,300 a m on th fo r tw o n u rs e s ’ wages plus the in itia l cost o f the equipm ent in clu d in g the re s p ira to r, a he a rt m o n ito r and a suction m achine. The B rin k le y s ’ share of ju s t the nurses’ wages w ill am ount to m ore than Roy m akes as a jo in e rm a n at C ham pion In te rn a tio n a l in L e b a n o n . J a m ie is not e lig ib le fo r social se cu rity or the C rip p le d C h ild re n ’s fund. “ T h e re ’s som ething wrong w ith a system when people who w o rk h a rd and oay th e ir taxes c a n ’t even get some help when they re a lly need it . ” Some frie n d s have taken the in itia tiv e to collect some m oney fo r J a m ie by setting up donation cans in d iffe re n t pa rts of the c ity . A fund has also been set up through the B r in k le y s ’ c h u rc h in Lebanon. D onations m ay be sent to the “ J a m ie B rin k le y “ T he kids have looked into e ve ry possible w a y to get fin a n c ia l help fo r J a m ie ,” sa id D uncan B rin k le y . “ The th in g th a t I guess sours me about th is is th a t if Roy w e re n ’t w o rk in g o r if they w e re n ’t m a r r ie d , th e n S h e rry cou ld get help fro m the go vern m ent. F u n d ” in care of the Lebanon Chapel, 723 P a rk , Lebanon, O regon, 97355. S h e rry has been stayin g in the sam e room w ith Ja m ie to learn how to help take care of h im when he goes home alth ou gh the tw o nurses w ill s t ill be needed fo r the 24-hour c a re . J a m ie ’ s b r o th e r , B obby, 12, and sister Denise, 7, w ill also be helping out at home. “ T h e y ’ve learned a little b it about w hat they can do to h e lp ,” S h e rry said. “ And th e y ’re ve ry excite d to have h im h o m e .” .J a m ie was scheduled to go hom e Dec 16, but he caught a cold and the fa m ily and doctors thought it w ould be b e tte r fo r h im to get w e ll in the ho spita l. “ T he kids were re a lly disappointed that he cou ld n’t com e hom e on S a tu rd a y ,” S he rry said. “ B u t I ’ m ju s t th a n k fu l it happened now instead of la te r. B u t we s t ill a re Staff photos by Jan Lovell DUNCAN AND Bea Brinkley of Boring hold a photograph of their grandson Jamie, inset, who has been in intensive care at the University of Oregon d id not m a te ria liz e , and only s ca tte re d outbreaks of A- V ic t o r ia f lu s t r a in w e re rep orted . These fa cto rs produced a 20 percent decrease in the death ra te caused by in fluenza and pneum onia The death rate of 8.8 per 1,000 p o p u la tio n is th e lo w e s t annual rate recorded in the U nited States, said H EW o fficia ls. In fa n t m o rta lity rates also d e c re a s e d d u r in g 1977. R eports showed a fig u re of 14 deaths fo r eve ry 1,000 liv e b irth s. T his fig u re is down fro m the 1950 m o rta lity ra te of 30 deaths fo r every 1,000 liv e b irth s. The s ta tis tic s are based on a 10 percent sam p lin g of deaths. I f they prove ac falling from a toy. His family is hoping to bring the boy, who must have constant and costly care, home in Lebanon. Ore. by Christmas. Health Sciences Center in Portland since Aug. 28. He has a genetic enzyme deficiency that will eventually kill him and he is also paralyzed after Life expectancy has increased by three years L ife expectancy in the U nited States has reached 73.2 yea rs of age, fe d e ra l governm ent studies show. The fig u re is based on studies m ade d u rin g 1977 and represents alm ost a fiv e - m onth increase fo r babies bo rn th e p re v io u s y e a r , according to the D e p a rtm e n t of H ealth, E ducation and W elfare. The s ta tis tic represents a th re e -y e a r e x p e c ta n c y in crease fo r babies born in 1968 The H EW re p o rt showed th a t w h ite fem ales born in 1977 can expect a life span of 77.7 years. W hite m ales w ere given a 69.9 y e a r life ex pectancy F o r non-w hite fem ales, the life expectancy ra te was rep orted a t 73.8 yea rs and non-w hite m ales have a life expectancy of 65 years. The N a tio n a l C enter fo r H ealth Sciences re p o rte d a m a rk e d d e c lin e in th e m o rta lity rate. The decline was a ttrib u te d to absence of an influe nza ep id em ic in 1977, the study said. P u b lic o ffic ia ls a n ticip a te d a sw ine flu epidem ic, w h ich cu ra te , 1977 w ill be the only ye a r in fa n t m o rta lity had dropped. In ra n k in g causes of death, th e r e p o r t sho w s h e a r t d is e a s e as th e le a d e r, a lth o u g h th e n u m b e r o f fa ta litie s has decreased. Classified Business, Professional Directory For Your Card In This DIRECTORY — FURNITURE New and Used B & B EMPORIUM Unfinished Furniture CLEAN BILL OF HEALTH. "The Everything Store 38888 Pioneer, Sandy 668-5448 7 9 0 9 0 Pioneer Blvd X jS J L S jJ f PO Box 5 9 3 Sandy. O rr PUM P » SUPPLY Fairbanks Morae PLUM BING Rad Jacket 668 2683 SAND and GRAVEL AUTO PARTS ACTION Saadj.lrafae ROCK CREEK SAND AND GRAVEL Crushed Rock. Fill and Top Soil 658 3138 CONCRETE READY M IX P re rte r Blvd r, a « re „ er B B t U H MT HOOD READY MIX Ready M u Concrete Rock B oo k k ee p in g A In co m e Taxes P ickup & D eliv e ry Phone 668 6515 Plant located at Pirw ood Junction MARX & CHASE Registered Land Surveyor Rag s'ered Land Surveyor Surveying MaoP'ng Subd'visions O ttice located at 225 E Burnside Ext 6688224 AUTO REPAIRS A U t i 1 ' Prepaid Health Care 'ijA S L ' J O E tC Telephone 668 4175 '/< & **** G u a r a n te e d S e rv ic e On All M a k e s 668 7363 TV * * o d '<’ Service CEDAR PLA ZA No 1 LO W ER L E V E L Carry In Service PLUMBING 9 M E K T F R Sandij Shoe K e b a ir UOCATCO IT J IO M IlNlQ WO Gresham TELEVISION SERVICE SANDT AUTO IODT INC. 36660 Pioneer Blvd Sendy . Oregon 97055 Crushed Sand end Gravel LAND SURVEYOR SHOE REPAIR G b d s to w <>R'>7l»27 Phone h-SO 4212 668 4993 668 4902 A L L M A IN T A X SERVICE Cedar Plaza Bldg. Suite No. 9 lH H X IS E M d o u g h h n P O Box Sal»» Service. Installation Sandy Stenography ' Typing • Bookhaepinq • An.wvr mg $•'«><» PHYSICIANS ASSOCIATION OF CLACKAMAS COUNTY BENSHOOF Plumbing & Heating D fit A PUMP fit SUPPLY TAX CONSULTANT Coll 660-0157 Loop H w y & Boring Road. G ra h a m Telephone 6 6 3 4 35 3 S A LE S and S E R V IC E >eia I For more information: “ Ltoenaed Bonded 6 6 8 7491 S«« Us for Naw Jacuzzi Pumpt and Repairs on all Makas of Pumps tr» m T k rltfw e y BBS t l t d cians’ Association of Clackamas County means to our subscribers. That’s right. As long as your care is provided by our member physicians, lospitals, clinics and pharmacies, your lealth bills are paid-in-full And you’ll Lae Edgren - Ciarli H all Sandy Furnace Air C onditioning Heating & R efrigeration Service Phone 6 68 5 4 5 4 or 6 2 2 4 5 7 5 Sdetdcf ScClCfalicd — Service — find these people ready to help you nearly everywhere. For more information about how you can clean up your health bills, call or stop by our office today. We’ve got a prepaid health plan that’s just right for you, your co workers and your families. fjß r . Residential C om m ercial Rem od ellng A d d itio n s * itchens-Baths BERGH MACHINERY CO SECRETARIAL N, more medical bills That’s what the Physi REMODELING C0.L Remodeling Specialists CROWN FURNACE OPEN 7 DAYS A WEEK 39130 Proctor Blvd. 668 5509 (N ea t to Sandy C yelei Sandy, Ora. under God Phone 6 6 8 -5 5 4 8 MACHINERY FURNACES Auto A Truck Parti Co. '"Ye dwell in one world, and have been created through the operation o f one Will. Blessed is he who mingleth with all men in a spirit o f utmost kindness and love.” B ah au llah and don’t even know who th e ir fa m ilie s a re ” D o cto rs have given Ja m ie two m onths to tw o years to liv e . P n e u m o n ia and m assive in fe ctio n s are his biggest p o te n tia l enemies Duncan said doctors also told the fa m ily ta k in g Ja m ie hom e w ill also pro ba bly m ake h is life s h o rte r than if he stayed in a ho spita l. “ The fa m ily decided tha t q u a n tity isn’t the sam e as q u a lity ,” Bee said this a t a ll, ” D uncan said “ He w anted tha t table last year fo r C h ristm a s, but his pa re n ts to ld h im m aybe he could have it th is year. He sure ha sn ’t forgo tte n about th a t prom ise. “ H is m in d is s t ill so a le rt,” D uncan said. “ And he’s sharp enough to know how to ba rga in w ith the nurses “ W e’re ju st so th a n k fu l he is s t ill so a le r t,” Bea said “ T h e re a re som e ch ild re n in the re who a re ju s t vegetables d e te rm in e d to have him hom e by C h ristm a s d a y . ” S h e rry said J a m ie w ill have a quiet ho m ecom ing w ith ju st fa m ily and possibly some frie n d s “ H is little buddy across the stre e t is ve ry anxious to see h im , I know, though,” S h e rry said. J a m ie ’s only request fo r C h r is tm a s w i ll a ls o be w a itin g fo r him — a litt le w h ite tab le w ith apples painted on the top. “ J a m ie ’s m in d hasn’t been affe cte d by SANO» O R t This Space For Rent Phone 668-5548 <