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Thur« . Dec 21. 197« (See I) SANDY (Ore.) POST - 7
Christmas reunion made possible for family
By JAN LOVELL
L ik e
so m a n y
o th e r
fa m ilie s , the Roy B rin k le y s
w ant to share the C h ristm as
ho lid ays tog ether a t home.
B u t u n lik e m any other
fa m ilie s , th e B r in k le y s '
s im p le de sire to have th e ir
fa m ily
tog ether
fo r the
h o lid a y s m e a n s m a k in g
s p e c ia l
and
c o s tly
a r r a n g e m e n ts
w ith
th e
U n iv e rs ity of Oregon H ealth
Sciences C enter in P ortla nd .
T h e ir 4-year-old son J a m ie
has been under intensive
care at the h o sp ita l since
A u g . 28. He is pa ra lyzed fro m
the neck down.
J a m ie was born w ith a
genetic enzym e de ficiency
called “ M o rq u io ’s Disease.”
T his e x tre m e ly ra re disease
causes d e fo rm a tio n of the
bones and a b n o rm a litie s in
the body tissues. The con
dition ha d not been po sitive ly
diagnosed u n til th is sum m er,
even though his head began
to f a ll back and his feet
began to tu rn under.
J a m ie w ill e ve n tu a lly die
from the disease o r its
com p lica tion s. Since J u ly ,
Ja m ie has had to fig h t even
m ore d iffic u ltie s . One day he
fe ll o ff his fa v o rite toy
m o to r c y c le .
That
f a ll
severely dam aged his spinal
colum n , causing pa ra lysis in
his le ft side.
A n a tte m p t a t co rre c tiv e
su rg e ry on Aug. 28 fa ile d and
J a m ie B rin k le y has been
to ta lly pa ralyzed fro m his
neck dow n ever since.
A lth o u g h he was taken out
of the in te nsive care u n it
alm ost tw o weeks ago J a m ie
is s t ill under 24-hour care. He
m ust use a re s p ira to r and
bre a th e throu gh a tube in his
throa t.
J a m ie ’s fa m ily has been a
big p a rt of th a t 24-hour care.
H is
m o th e r and fa th e r,
S he rry and Roy, have spent
m any hours co m m u tin g fro m
th e ir hom e in Lebanon to the
h o sp ita l. S h e rry even stayed
in a m o b ile hom e in the
h o sp ita l p a rk in g lot the firs t
few c r itic a l weeks a fte r the
su rg e ry.
R oy’ s parents, Duncan and
Bea B rin k le y of B o rin g have
a lso been a lm o s t d a ily
v is ito rs . R oy’s b ro th e rs and
sisters, C a rl, Vona and Gwen
have been able to v is it Jam ie
also. A ll are gra du ates of
Sandy H ig h school, and, w ith
the exception of Vona, s till
liv e in the S andy-B oring
area.
B u t J a m ie ’s fa m ily has
decided th a t i t ’ s tim e fo r h im
to com e hom e again. T h e y’ ve
been pla n n in g since O ctober
to have J a m ie hom e in tim e
fo r C h ristm a s day. “ We’ ve
ju s t got to have h im home for
C h ris tm a s ,”
S h e rry said.
“ We
spent T ha n ksg ivin g
here and we don’t w ant to
have to do th a t again. We ju st
w a nt to be one fa m ily
a g a in .”
T h a t s im p le
w is h o f
w a n tin g J a m ie back home
again w ill be a co stly p ro je ct
fo r the fa m ily . As long as he
is in the h o sp ita l, the in
surance covers the costs.
Once J a m ie goes home,
ho w e ver, the B rin k le y s m ust
pa y tw e n ty percent of the
cost.
The B rin k le y s ’ share of the
cost w ill include at least
$1,300 a m on th fo r tw o
n u rs e s ’ wages plus the in itia l
cost o f the equipm ent in
clu d in g the re s p ira to r, a
he a rt m o n ito r and a suction
m achine.
The B rin k le y s ’ share of
ju s t the nurses’ wages w ill
am ount to m ore than Roy
m akes as a jo in e rm a n at
C ham pion In te rn a tio n a l in
L e b a n o n . J a m ie is not
e lig ib le fo r social se cu rity or
the C rip p le d C h ild re n ’s fund.
“ T h e re ’s som ething wrong
w ith a system when people
who w o rk h a rd and oay th e ir
taxes c a n ’t even get some
help when they re a lly need
it . ”
Some frie n d s have taken
the in itia tiv e to collect some
m oney fo r J a m ie by setting
up donation cans in d iffe re n t
pa rts of the c ity . A fund has
also been set up through the
B r in k le y s ’
c h u rc h
in
Lebanon. D onations m ay be
sent to the “ J a m ie B rin k le y
“ T he kids have looked into
e ve ry possible w a y to get
fin a n c ia l help fo r J a m ie ,”
sa id D uncan B rin k le y . “ The
th in g th a t I guess sours me
about th is is th a t if Roy
w e re n ’t w o rk in g o r if they
w e re n ’t
m a r r ie d ,
th e n
S h e rry cou ld get help fro m
the go vern m ent.
F u n d ” in care of the Lebanon
Chapel, 723 P a rk , Lebanon,
O regon, 97355.
S h e rry has been stayin g in
the sam e room w ith Ja m ie to
learn how to help take care of
h im when he goes home
alth ou gh the tw o nurses w ill
s t ill be needed fo r the 24-hour
c a re .
J a m ie ’ s
b r o th e r ,
B obby, 12, and sister Denise,
7, w ill also be helping out at
home.
“ T h e y ’ve learned a little
b it about w hat they can do to
h e lp ,” S h e rry said. “ And
th e y ’re ve ry excite d to have
h im h o m e .”
.J a m ie was scheduled to go
hom e Dec 16, but he caught
a cold and the fa m ily and
doctors thought it w ould be
b e tte r fo r h im to get w e ll in
the ho spita l. “ T he kids were
re a lly disappointed that he
cou ld n’t com e hom e on
S a tu rd a y ,”
S he rry
said.
“ B u t I ’ m ju s t th a n k fu l it
happened now instead of
la te r.
B u t we s t ill a re
Staff photos by Jan Lovell
DUNCAN
AND
Bea Brinkley of Boring hold a
photograph
of
their grandson Jamie, inset, who
has been in intensive care at the University of Oregon
d id not m a te ria liz e , and only
s ca tte re d outbreaks of A-
V ic t o r ia f lu s t r a in w e re
rep orted .
These fa cto rs produced a
20 percent decrease in the
death ra te caused by in
fluenza and pneum onia The
death rate of 8.8 per 1,000
p o p u la tio n is th e lo w e s t
annual rate recorded in the
U nited States, said H EW
o fficia ls.
In fa n t m o rta lity rates also
d e c re a s e d
d u r in g
1977.
R eports showed a fig u re of 14
deaths fo r eve ry 1,000 liv e
b irth s. T his fig u re is down
fro m the 1950 m o rta lity ra te
of 30 deaths fo r every 1,000
liv e b irth s.
The s ta tis tic s are based on
a 10 percent sam p lin g of
deaths. I f they prove ac
falling from a toy. His family is hoping to bring
the boy, who must have constant and costly care,
home in Lebanon. Ore. by Christmas.
Health Sciences Center in Portland since Aug. 28. He
has a genetic enzyme deficiency
that
will
eventually kill him and he is also paralyzed after
Life expectancy has increased by three years
L ife expectancy in the
U nited States has reached
73.2 yea rs of age, fe d e ra l
governm ent studies show.
The fig u re is based on
studies m ade d u rin g 1977 and
represents alm ost a fiv e -
m onth increase fo r babies
bo rn th e p re v io u s y e a r ,
according to the D e p a rtm e n t
of H ealth, E ducation and
W elfare.
The s ta tis tic represents a
th re e -y e a r e x p e c ta n c y in
crease fo r babies born in
1968
The H EW re p o rt showed
th a t w h ite fem ales born in
1977 can expect a life span of
77.7 years. W hite m ales w ere
given a 69.9 y e a r life ex
pectancy
F o r non-w hite fem ales, the
life expectancy ra te was
rep orted a t 73.8 yea rs and
non-w hite m ales have a life
expectancy of 65 years.
The N a tio n a l C enter fo r
H ealth Sciences re p o rte d a
m a rk e d d e c lin e in
th e
m o rta lity rate. The decline
was a ttrib u te d to absence of
an influe nza ep id em ic in
1977, the study said.
P u b lic o ffic ia ls a n ticip a te d
a sw ine flu epidem ic, w h ich
cu ra te , 1977 w ill be the only
ye a r in fa n t m o rta lity had
dropped.
In ra n k in g causes of death,
th e r e p o r t sho w s h e a r t
d is e a s e as
th e le a d e r,
a lth o u g h th e n u m b e r o f
fa ta litie s has decreased.
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'"Ye dwell in one world,
and have been created
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one Will. Blessed is he
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B ah au llah
and don’t even know who
th e ir fa m ilie s a re ”
D o cto rs have given Ja m ie
two m onths to tw o years to
liv e .
P n e u m o n ia
and
m assive in fe ctio n s are his
biggest p o te n tia l enemies
Duncan said doctors also
told the fa m ily ta k in g Ja m ie
hom e w ill also pro ba bly
m ake h is life s h o rte r than if
he stayed in a ho spita l. “ The
fa m ily decided tha t q u a n tity
isn’t the sam e as q u a lity ,”
Bee said
this a t a ll, ” D uncan said
“ He w anted tha t table last
year fo r C h ristm a s, but his
pa re n ts to ld h im m aybe he
could have it th is year. He
sure ha sn ’t forgo tte n about
th a t prom ise.
“ H is m in d is s t ill so a le rt,”
D uncan said. “ And he’s
sharp enough to know how to
ba rga in w ith the nurses
“ W e’re ju st so th a n k fu l he
is s t ill so a le r t,” Bea said
“ T h e re a re som e ch ild re n in
the re who a re ju s t vegetables
d e te rm in e d to have him
hom e by C h ristm a s d a y . ”
S h e rry said J a m ie w ill
have a quiet ho m ecom ing
w ith ju st fa m ily and possibly
some frie n d s
“ H is little
buddy across the stre e t is
ve ry anxious to see h im , I
know, though,” S h e rry said.
J a m ie ’s only request fo r
C h r is tm a s w i ll a ls o be
w a itin g fo r him — a litt le
w h ite
tab le w ith
apples
painted on the top. “ J a m ie ’s
m in d hasn’t been affe cte d by
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Phone 668-5548
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