7A
THE DAILY ASTORIAN • THURSDAY, JULY 2, 2015
Malady: ‘Whoever he is with, I have to make sure he is safe’
Continued from Page 1A
start a conversation with local
paramedics, while on shift at
her job at Wet Dog Cafe in
Astoria.
She asked the paramedics if
the\ carried the speci¿c medicine,
Solu-Cortef, necessary for people
with adrenal insuf¿ciency. With-
out the medication, the condition
can be fatal.
The paramedics said they did
not carry the medicine.
Norgaard helped write pro-
tocol for Medix, comparing
Solu-Cortef to insulin needed by
diabetics. The medicine is now
available by Medix and at Colum-
bia Memorial Hospital.
“That is part of our daily strug-
gle. If we go somewhere that is
not Clatsop County, where we
have protocol, is he going to be
safe? The answer is, ‘no,’” Kirsten
Norgaard said.
Changing the law
The two bills that passed
this session are Senate Bill 874
— requiring the Oregon Health
Authority to train healthcare pro-
fessionals about adrenal insuf-
¿ciency — and Senate Bill 87
— allowing trained school per-
sonnel to administer medication
to students.
Both bills go into effect in Jan-
uary.
State Rep. Alissa Keny-Guyer,
D-Portland, offered her input
during the ¿nal reading of SB 874.
“The most urgent need in the
adrenal insuf¿ciency community
is for protocols to treat adrenal in-
suf¿ciency in the prehospital and
emergency department settings,”
Keny-Guyer said. “Many other
states and cities have created and
used protocols to save lives. We
need the same in Oregon.”
Norgaard credits Knapp, who
took time away from her work to
be in Salem full-time during the
legislative session, and state Sen.
Betsy Johnson, D-Scappoose,
who supported the bills from Day
1.
)or the ¿rst hearings in Salem,
Norgaard brought her son and
9-year-old daughter, Faith Nor-
gaard. The group personally hand-
ed out cupcakes to the lawmakers’
of¿ces. The cupcakes were in
honor of a girl named Annie who
died after being misdiagnosed
when she had adrenal insuf¿cien-
cy. The girl’s favorite thing to do
was bake cupcakes with her mom.
“That little personal story
opened so many doors,” Kirsten
Norgaard said.
Spending time in the state
capital was an eye-opening expe-
rience for the Norgaards. Senate
Bill 874 had opposition from lob-
byists who claimed the medical
community already knew about
the condition.
Norgaard said she had a hard
time explaining lobbyists to her
two children.
“My little girl wondered how
anyone would want her brother to
die,” she said. “How can you ex-
plain that?”
Staying safe
Norgaard admits she was ter-
ri¿ed when her son started kinder-
garten. With the school nurse only
available once a week and school
staff not trained in administering
the medication, she was worried
Jennifer Knapp of Eugene,
who founded the nonprofit
Adrenal Insufficiency Unit-
ed with Kirsten Norgaard,
handed out cupcakes to
lawmakers in Salem. The
cupcakes were in honor of
a girl who died from being
misdiagnosed when she
had adrenal insufficiency.
KIRSTEN NORGAARD —
Submitted photo
what might happen if her son had
a problem.
“Whoever he is with, I have to
make sure he is safe,” she said.
A couple of weeks ago, Tristan
Norgaard had an incident that
proved the importance of having
adrenal insuf¿ciency medication
readily available. He was hit in
the mouth with a metal baseball
bat before a T-ball game. For oth-
er people who get smacked in the
face with a bat, their cortisol levels
start pumping at 10 times the nor-
mal level. For Tristan, his cortisol
does not pump at all.
“If I wasn’t there at that game,
he would have gone into shock
and within 30 minutes he could
have been dead,” Kirsten Nor-
gaard said.
With awareness increasing
across the state, Norgaard does not
worry as much anymore.
She recently met a local man
who said he was just diagnosed
with adrenal insuf¿ciency at Co-
lumbia Memorial Hospital.
“That is because of Tristan and
the protocol we have at CMH,”
Norgaard said. “Because they
know to ¿nd symptoms, because
that is part of the protocol, they
were able to save him.”
Guru: Marsh wants ‘one in
every state, county, country’
Continued from Page 1A
“I don’t even want to sell
Àowers,” he said.
Marsh said he would hand-
pick the center’s directors.
“I’m going to have a test, just
like you have to go take a bar-
tender test,” he said, adding he
has to create the quali¿cations
because no industry standard
exists. “It’s going to be someone
who’s quali¿ed, in my eyes, to
dispense that info.”
If a patient comes in with a
serious health condition, he said,
they could consult via teleconfer-
ence with medical professionals.
Patients could also get their med-
ical marijuana cards, referrals to
suppliers, dosage protocols and
even deliveries to their homes.
“I’d like to open one in every
state, county, country,” Marsh
said. “My goal is to open them
worldwide.”
Spreading the word
One thing Marsh has been
good at is getting attention.
He runs a website — www.
thecannabisconsultants.com —
which he calls the LinkedIn for
resources on the medicinal use of
cannabis.
In May 2012, Marsh started a
Facebook page called “Cannabis
Oil Success Stories” that now has
more than 4,000 likes.
Marsh said he has been in-
terviewed by a Playboy.com
correspondent, will be featured
in an upcoming documentary
by HBO’s news program “Vice”
and is preparing to publish a
book, “Random Acts of Canna-
bis.”
He said he has purchased 37
cannabis-related Web domains,
in part to keep them out of cor-
porate hands and available for
people who want to start related
endeavors.
“It’s an interesting scenar-
io that’s gone from 1993 to this
point,” Marsh said, adding he has
been telling people for the past 22
years they have receptors for can-
nabis. “We’ve treated hundreds
of people all around the world.”
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